Worldwide Map Registration

You need to fill the form below and put a pin close to your location on the map. You will also receive an email to validate your email address. Once the email address is validated your pin will start showing on the map.

The worldmap will provide guidence to researchers and volunteers to plan & coordinate better. It is inspired by previous work for rare genetic disorders like: SynGAP, ADNP, GRIN2B and DYRK1A

The data is used mainly for research and planning purposes. However if you allow so, other parents can get in contact with you (Not available yet).

You can follow this link to log in.

You can login by clicking here. Then you can access your account page and update your profile.

Click here and then click on the forgot password link.

Please send an email to [email protected] from the email address you signed up to our map stating your request for deletion.