Community 🇬🇧 Directly KS related

Helen Journal Cover Story: Sophia, Olivia, and the Kleefstra Community

person Helen

calendar_today Aug 7, 2026

Helen Journal features sisters Sophia, 6, and Olivia, 10, in a story highlighting family, resilience, and life with Kleefstra syndrome. The article shares Sophia’s developmental journey, Olivia’s role as her devoted supporter, and their family’s connection to IDefine. It also explores the organization’s work to bring families, researchers, and clinicians together while advancing awareness, inclusion, and research for the Kleefstra syndrome community.