Event 🇬🇧 Directly KS related

2026 Kleefstra Syndrome Family Conference Agenda

person IDefine

calendar_today Jul 31, 2026

The agenda for the 2026 Kleefstra Syndrome Family Conference is now available. Taking place August 7–8 in Boston, the program includes sessions on gene therapy, EHMT1 research, seizures, sleep, gastrointestinal care, clinical guidelines, the ACTION study, future planning and family support. Families can also access specialized childcare, genetic counseling, biorepository participation and community activities.